OK. So here we are at Primary Children's Hospital. So far so good. We haven't been able to meet with the doctors yet, but they've gone ahead and started Nick on the new medicine. This one is called Sotalol. If it works, it's supposed to be great. If not, it sounds like the danger lies in causing frequent SVT. (supraventricular tachycardia-- a super fast beating of the heart) ... Which can last seconds or days. This can cause a myriad of other problems: difficulty breathing, dizziness, weakness, etc. (sounds a little like the fibrillation's he's had so often-- but until I speak to the cardiologist I wont really know the details) We'll just have to see.
This medicine is a "twice a day medicine". Once in the morning and once in the afternoon, which means I'll have to be very diligent with keeping on top of that. That's about it. Right now we are just hanging out in the hospital room watching episodes of Sesame Street, and keeping an eye on Mr. Nickster, waiting to meet with some specialists.
On a fun note, it turns out that Nick's nurse today is a grade-school friend of mine's mother! Her name is Julie Perry. It was really nice to get to chat with her and find out how her son Donovan is. I mentioned to Mom that it was a bright spot in the day and maybe one of the Lord's tender mercies for me. She agreed that it was a "nice touch". It seems so rare these days that I ever get to talk to someone from my early childhood, and I haven't heard from Donovan in about 8 or 9 years! Anyway, it was a fun surprise :)
We'll post any news that we get or that happens. Thank you all SO MUCH for your prayers and support. It means so much to us, and we KNOW that prayer works. We love you all!!
6 years ago
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