Saturday, April 19, 2008

Dr. Cowley Called

So...
Dr. Cowley called yesterday and said that he had heard back from the Mayo Clinic in Rochester, MN. His colleague and the surgeon there have looked at Nick's information and images and things and that they think a repeat surgery would be worth doing. They still would not try to remove the entire tumor (because they can't due to it's location) but, they would try to resect it some more.
Dr. Cowley said that he will discuss the situation again with the entire team of cardiologists and the cardio-thoracic surgeons this coming Wednesday and also present the 2nd opinion shared by the Mayo clinic, and then he'll call us back. He said that if we choose to do another surgery and for some reason the surgeon at PCMC does not want to do it or feels like he would not be able to be helpful through surgery, that we will have the option of going to the Mayo clinic to have the surgery done.
It's scary to me. Heart surgery is very serious. We've made it through one open heart surgery and then the cath and the implant of the ICD, and countless other smaller things, but the thought of doing another surgery just makes me all knotted up. It's so hard to see your child after OHS. You do what you have to - especially if you think it may help your child or even save their life, but to have to see a little one with the machines and drainage tubes and stitches and blood and IV's and so on, and NOT be able to hold them or do anything to help is ... indescribable. Not to mention all of the risks that are involved.
On the other hand, if the doctors and surgeons think that this could help him, then I suppose we'll have a lot to consider and pray about.





Here is a photo of our FAVORITE cardiologist and Nick about 1 year ago. Any prayers offered up for this wonderful man that he might be inspired and have the knowledge to do what is in Nick's best interest are GREATLY appreciated! :) Thanks everyone. We love you.

4 comments:

carolyn q said...

I will be praying that the doctors will continue to be inspired, which I really think Dr. Cowley has been in trying to help and research.
Keeping your family and the Dr.s in my prayers that inspiration and direction from above will take place.
Heart Hugs,
Carolyn

Mp said...

Always keeping your sweet Nick in our prayers and as you pray and consider his options. These heart kids are very special and I'm sure you'll find the inspiration needed to insure his best care through your faith in the Lord.

Hugs,
Mike & family

Natalie Walker said...

You're in our prayers...

ang said...

Oh Darla and Josh- you've got such strength...not to mention how amazing your sweet Nick is. Thanks for being an example of deep faith for us! You're in our prayers!! With Love- Ang